SELECTED ACADEMIC PUBLICATIONS

Dr. Caruso Brown’s NCBI bibliography is available here: https://www.ncbi.nlm.nih.gov/myncbi/1F9gek5wjv954/bibliography/public/

Treatment Refusal and Decisional Conflict in Pediatrics

• Caruso Brown AE. The last bastion of paternalism? A reflection on proceduralism, power and privilege. Journal of Clinical Ethics 2021;32(2): in press.
• Caruso Brown AE. Acquiescence is not agreement: The problem of marginalization in pediatric decision making. American Journal of Bioethics 2021; epub ahead of print. https://www.tandfonline.com/doi/abs/10.1080/15265161.2021.1887964
• Kania T, Schafer ML, Caruso Brown AE, Olick RS, Lantos JD. Ethics rounds: Should a teen be allowed to leave the hospital AMA to attend his father’s funeral? Pediatrics 2018;141(5):e20170902. https://pediatrics.aappublications.org/content/pediatrics/early/2018/04/04/peds.2017-0902.full.pdf
• Caruso Brown AE. Reconsidering refusal: Are some cases refractory even to the best tools? American Journal of Bioethics 2018;18(8):61-63. https://www.tandfonline.com/doi/full/10.1080/15265161.2018.1485771
• Caruso Brown AE, Slutzky AR. Refusal of treatment of childhood cancer: A systematic review. Pediatrics 2017;140(6):e20171951. https://pediatrics.aappublications.org/content/140/6/e20171951
• Caruso Brown AE. At the intersection of faith, culture, and family dynamics: A complex case of refusal of treatment for childhood cancer. Journal of Clinical Ethics 2017;28(3):215-222. https://europepmc.org/article/med/28930710
• Caruso Brown AE. Family-centered care and evidence-based medicine in conflict: Lessons for pediatricians. Hospital Pediatrics 2015;5(1):52-54. https://hosppeds.aappublications.org/content/5/1/52.short

Social Media and Pediatric Medicine

• Foot E, Leonhard A, Majeski J, Zahn L, Li HH, Caruso Brown AE. “The stakes could not be higher”: A mixed-methods study of parental social media use in pediatric oncology. Pediatric Blood and Cancer 2021; in press.
• Caruso Brown AE. Social media in the pediatric hematology/oncology clinical space. Journal of Pediatric Hematology/Oncology 2021;43:e37–e44. https://journals.lww.com/jpho-online/Fulltext/2021/01000/Social_Media_in_the_Pediatric_Hematology_Oncology.21.aspx
• Caruso Brown AE, Arthur JD, Mutrie LH, Lantos JD. Ethics rounds: Seeking a second opinion on social media. Pediatrics 2019;144(5): e20190817. https://pediatrics.aappublications.org/content/144/5/e20190817.abstract

Other Issues in Pediatric Clinical Ethics

• Hootnick RD, Ellingsworth L, Mauchin R, Caruso Brown AE. “It occupied her entire childhood”: Looking back on limb lengthening. Pediatrics 2021;147(2): e20201055. https://pediatrics.aappublications.org/content/147/2/e20201055.abstract
• Caruso Brown AE. Constrained adolescent autonomy for healthcare should include participation in survey research. American Journal of Bioethics 2020;20(10):85-87. https://www.tandfonline.com/doi/full/10.1080/15265161.2020.1806377
• Caruso Brown AE. Reconceiving decisions at the end of life in pediatrics: Decision making as a form of ritual. Perspectives in Biology and Medicine 2019;62(2):301-18. https://muse.jhu.edu/article/728488/summary
• Sharma A, Johnson L, Caruso Brown A, Unguru Y, Lantos JD. Ethics rounds: An extravagant gift from a grateful patient. Pediatrics 2018;141:e20172837. https://pediatrics.aappublications.org/content/141/6/e20172837
• Caruso Brown AE. Should clinicians intervene if they suspect that a caregiver whose child has cancer is at risk of psychological harm? AMA Journal of Ethics 2017;19(5):493-500. https://journalofethics.ama-assn.org/article/should-clinicians-intervene-if-they-suspect-caregiver-whose-child-has-cancer-risk-psychological-harm/2017-05

Diversity, Equity and Inclusion in Healthcare and Medical Education

• Caruso Brown AE, Hobart TR, Botash AS, Germain LJ. Can a checklist ameliorate bias in medical education? Medical Education 2019;530(5):510. https://europepmc.org/article/med/30856280
• Caruso Brown AE, Frega KC. Who deserves access to care in children’s hospitals? Hastings Center Report 2018;48(6):7-11. https://onlinelibrary.wiley.com/doi/abs/10.1002/hast.929

Other Issues in Medical Education

• Caruso Brown AE. Choosing to care for children who might die: Conversations with pediatric residents. Perspectives in Biology and Medicine 2017;60(2):247-257. https://muse.jhu.edu/article/678437/summary
• Welch TR, Caruso Brown AE, Botash AS. Using student reflective narratives to teach professionalism and systems-based practice. Journal of Pediatrics 2017;187:5-6.e1. https://www.jpeds.com/article/S0022-3476(17)30596-6/pdf
• Caruso Brown AE, Suryadevara M, Welch TR, Botash AS. “Being persistent without being pushy”: Student reflections on vaccine hesitancy. Narrative Inquiry in Bioethics 2017;7(1):59–70. https://muse.jhu.edu/article/664724/summary
• Caruso Brown AE, Garden R. From silence into language: Questioning the power of physician illness narratives. AMA Journal of Ethics 2017;19(5):501-07. https://journalofethics.ama-assn.org/article/silence-language-questioning-power-physician-illness-narratives/2017-05

Global Pediatric Oncology and Palliative Care

• Caruso Brown AE, Asturias EJ, Melgar M, Antillón FA, Mettler PL, Levin MJ. Incidence and consequences of varicella in children treated for cancer in Guatemala. World Journal of Pediatrics 2016;12(3):320-326. https://link.springer.com/article/10.1007/s12519-016-0025-y
• Caruso Brown AE, Howard SC, Baker J, Ribeiro RC, Lam CG. Reported availability and gaps of pediatric palliative care in low-income and middle-income countries: A systematic review. Journal of Palliative Medicine 2014;17(12):1369-83. https://www.liebertpub.com/doi/abs/10.1089/jpm.2014.0095